"One of the key initiatives of the 50/50 campaign we launched this past month is to enhance efforts to increase financial support and awareness for the rare cancer community," Zanetta Davis said. "We've decided that traveling to Austin to publicly speak up and show our support was a great official first step toward that goal."
Davis will team up with the leaders of the Cynthia Solomon Holmes Foundation (CSHF), a sarcoma organization based in Houston, to represent sarcoma as a rare disease at the rally.
"We have teamed up with CSHF on several occasions to support each other," Davis said. "This is a great opportunity for us to continue as a united front in our common goals of spreading awareness of sarcoma and ultimately ending the disease."
The speech Davis is set to deliver will be focused on 'discovering the advocate in each of us.' In addition to Davis, there will be inspiring speeches by many touched by rare diseases, including doctors, researchers, patients, families and more.
Everyone is welcome to attend the Rare Disease Day Awareness Rally at the Texas State Capitol in Austin on February 28, 2013 from 8:30-10:30am. The event is sponsored by the National Organization for Rare Disorders' (NORD) Central Texas Chapter.
For more information on this event and other Rare Disease Day events across the U.S., please visit: http://rarediseaseday.us/.
About the Eric D. Davis Sarcoma Foundation:
The Eric D. Davis Sarcoma Foundation (EDDF) was established in 2012 by Eric's family and friends in his honor and memory. EDDF is a 501(c)(3) organization dedicated to finding a cure for sarcoma, a rare cancer, by increasing public awareness, funding sarcoma research, and providing support for adults with sarcoma and their families through financial assistance, education and advocacy. The organization is based in Mesquite, Texas, and online at EricDDavisFoundation.org. Contact EDDF by phone at 1-866-543-4351 or email at Info@EricDDavisFoundation.org.
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